When the diagnosis of cystic fibrosis is given to a family, we are here to offer them support and encouragement. Caboose Comfort Totes are a way of letting them know they are not alone and there are others who have experienced this to walk with them on this life-altering journey. The totes are custom made for the age of the child and filled to the brim with basic necessities and fun items to make the family’s extended hospital stay more comfortable. When admitted, most families spend at least two full weeks in the hospital. Items include a lap blanket or quilt, parking passes, quarters for the vending machines, socks, toiletries, laundry detergent, notebook & pen, lotion, gift cards to local eateries, books, games, playing cards, batteries, magazines, etc.
This is a great service project for a group…we provide the tote and you fill it! If your group would like to help, please contact us.
Children with CF spend many hours, days, and even weeks at a time in the hospital, that can also include holidays. As one of those kids, 14 year old Jack organized and ran our 1st annual Christmas toy drive. 6 years later, we are still going strong!
The idea is simple: A new toy can send a child’s spirits soaring despite being away from home. As a bonus, donated toys can also alleviate some of the financial stress for families preoccupied with a child in the hospital.
Toys are collected from participating schools, churches, and civic organizations, and then given out at the annual CF Christmas party. Remaining toys stock the toy closets at Children’s Hospital in the Child Life Department.
Cystic Fibrosis can be a very isolating disease, not just for the patients but for the entire family as well. The Parent-to-Parent Network is designed to help families cope with challenges, adjust to the lifestyle changes, and most importantly find hope.
CF Parent Dinners are hosted the second Monday of each month in the Dallas area. This is an adult only meeting. Dinner is provided by Blue Caboose. This is an opportunity for CF parents and adult loved ones of CF patients and caregivers to share their experiences, best practices, well-wishes and positive thoughts with each other. CF is a high-maintenance disease that affects the whole family. We invite you to be a part of a community that has first-hand experience with your struggles, your pain, your joys and your triumphs, as we all travel similar paths on a very difficult journey.
For more info, you can contact us or you may look at our event calendar for the latest posted meeting information.
When a child spends long amounts of time in the hospital, returning to school can be a challenge financially. Each year, the Blue Caboose provides a backpack full of school supplies to children with CF and their siblings through Children’s Medical Center. We are sometimes asked to provide back to school clothing for children in need also.
Cystic Fibrosis is a battle, and we’re committed to helping families dealing with this disease as well as teaching others about it.
We are available to hold public awareness presentations to:
• Community Organizations
• Religious Groups and Churches
• School Groups
• Community Events via Information Booths
• and more.
We are also available to speak to a school on behalf of a child with CF and their family to educate the classmates and staff about CF.