When the diagnosis of cystic fibrosis is given to a family, we are here to offer them support and encouragement. Their first hospital stay can be terrifying. Blue Caboose makes an effort to visit all children admitted to the hospital and provide them with Caboose Comfort Totes. The totes are our way of letting them know they are not alone and there are others who have experienced this to walk with them on this life-altering journey. The totes are custom made for the age of the child and filled to the brim with basic necessities and fun items to make the family’s extended hospital stay more comfortable. When admitted, most families spend at least two full weeks in the hospital. Items may include a lap blanket or quilt, parking passes, quarters for the vending machines, socks, toiletries, laundry detergent, notebook & pen, lotion, gift cards to local eateries, books, games, playing cards, batteries, magazines, etc.
This is a great service project for a group… we provide the tote and you fill it! If your group would like to help, please contact us.
Holidays are supposed to be fun and exciting for families, but when your family is faced with a disease like cystic fibrosis, sometimes the financial or medical obligations outweigh the fun and excitement. Blue Caboose hosts toy drives throughout the year and during the holiday season we co-host a holiday party where parents are able to “shop” our toy workshop to choose gifts for all of the children in their home. By providing these gifts we are ensuring that all of our CF families are able to enjoy the holiday season without having to worry about being able to afford gifts for their children.
Hosting a toy drive is fun, easy, and extremely rewarding! Contact us if you are interested!
Cystic Fibrosis can be a very isolating disease, not just for the patients but for the entire family as well. The Parent / Caregiver Network is designed to help families cope with challenges, adjust to the lifestyle changes, and most importantly find hope.
Parent / Caregiver Dinners are hosted each month around the Dallas and Fort Worth area. This is an adult only meeting. Dinner is provided by Blue Caboose. This is an opportunity for CF parents and adult loved ones of CF patients and caregivers to share their experiences, best practices, well-wishes and positive thoughts with each other. CF is a high-maintenance disease that affects the whole family. We invite you to be a part of a community that has first-hand experience with your struggles, your pain, your joys and your triumphs, as we all travel similar paths on a very difficult journey.
For more info, you can contact us or you may look at our event calendar for the latest posted meeting information.
When a child spends long amounts of time in the hospital, returning to school can be a challenge financially. Each year, the Blue Caboose provides a backpack full of school supplies to children with CF and their siblings. We are sometimes asked to provide back to school clothing for children in need also.
Cystic Fibrosis is a battle, and we’re committed to helping families dealing with this disease as well as teaching others about it.
We are available to hold public awareness presentations to:
• Community Organizations
• Religious Groups and Churches
• School Groups
• Community Events via Information Booths
• and more.
We are also available to speak to a school on behalf of a child with CF and their family to educate the classmates and staff about CF.